Monday, 2 May 2016

60 Things to Do to Raise Celiac Disease Awareness | BeyondCeliac.org

60 Things to Do to Raise Celiac Disease Awareness | BeyondCeliac.org
Make the most of Celiac Awareness Month 2016! How many ways can you spread awareness?

I found this article 60 Things to Do to Raise Celiac Disease Awareness | BeyondCeliac.org

60 Things to Do to Raise Celiac Disease Awareness | BeyondCeliac.org

And added TWO of my own !!!

AND 61 - Share my book with a local cafe or restaurant so that they prepare gluten free correctly http://ebook-cafes-restaurants.what-is-gluten-free.org/



AND 62 -  Share my gluten free book for the home with family and friends http://www.cooking.what-is-gluten-free.org/


Sunday, 24 April 2016

Tick Bites Have Made Red Meat A Nightmare For Thousands

I found this article By CLARISSA BYE in The Daily Telegraph - I thought it may be of interest.

Ticks cause health problems other than Lyme Disease - I wonder if any of you Lyme sufferers have experienced an allergy to red meat which could not be previously explained? 

Cooper Westaway with his mum Rebecca at their Warriewood home. Cooper, 16, was bitten by a tick at
school late last year.

TICK bites have caused more than 1000 Australians to develop a life-threatening allergy to red meat, with numbers of people affected rising dramatically over the past decade.

Immunologist Sheryl van Nunen sees between one to two victims every week at her Chatswood practice.

The allergy can cause an anaphylactic reaction up to eight hours after a person eats red meat, and the allergy can develop months after a bite.

Cooper Westaway with his mum Rebecca and dog Harvey: “I end up eating chicken all the time and I’m so sick of it.” Picture: Troy Snook
The Australian paralysis tick, which cause the mammalian allergy, is most common on the north shore and the northern beaches in Sydney, but are also found all along the east coast. “The numbers have increased markedly since 2003,” Dr van Nunen said.
“The important advice is to kill the tick where it is by freezing it with a spray from the pharmacy. Don’t squeeze it with tweezers.”

Sixteen-year-old Cooper Westaway (pictured) loves meat pizzas but can’t eat them any more. The Year 10 student from Warriewood now carries an epipen with him wherever he goes — all because a tick bit him at school last November.

“The tick gave me a meat ¬allergy, which is really annoying as I end up eating chicken all the time and I’m so sick of it,” Cooper says.
He is one of a growing number of Sydney-siders — and residents up and down Australia’s east coast — who have become victims of the unusual meat allergy caused by common bush ticks. A tick had attached itself to his head when he ran through bushes at his school, Mater Maria College.

Later in class he scratched it out and the bite site became really itchy. Being new to school, he didn’t want to speak up, and the reaction passed.

But a fortnight later, after a dinner of chilli con carne, he woke up in the night “going insane with itches” and with a swelling throat. The next day the GP sent him to see Dr van Nunen and blood tests confirmed the allergy diagnosis.

Cooper’s mother Rebecca Westaway said the state health department should be sending letters to schools to alert them to the dangers of ticks


Find out more about Lyme http://www.amazon.com/dp/B015PG1M1O


Australian Senate Inquiry Into Lyme-Like Disease

I have just become aware that the Australian Senate is conducting a review into Lyme-like disease in Australia. I am so pleased that the government is now taking this very seriously. Unfortunately, The submissions closed at the end of March so it is too late to give your point of view - but this is what the terms of reference are.
On 12 November 2015, the Senate referred the following matter to the Senate Community Affairs References Committee for inquiry and report:
The growing evidence of an emerging tick-borne disease that causes a Lyme‑like illness for many Australian patients.
The terms of reference are:
  1.  the prevalence and geographic distribution of Lyme-like illness in Australia;
  2.    methods to reduce the stigma associated with Lyme-like illness for patients, doctors and researchers;
  3. the process for diagnosis of patients with a Lyme-like illness, with a specific focus on the laboratory testing procedures and associated quality assurance processes, including recognition of accredited international laboratory testing;
  4. evidence of investments in contemporary research into Australian pathogens specifically acquired through the bite of a tick and including other potential vectors;
  5.  potential investment into research to discover unique local causative agents causing a growing number of Australians debilitating illness;
  6. the signs and symptoms Australians with Lyme-like illness are enduring, and the treatment they receive from medical professionals; and
  7. any other related matters.  
Submissions should be received by 31 March 2016. The reporting date is 20 June 2016.

Committee Secretariat contact:

Committee Secretary
Senate Standing Committees on Community Affairs
PO Box 6100
Parliament House
Canberra ACT 2600

Phone: +61 2 6277 3515
Fax: +61 2 6277 5829
community.affairs.sen@aph.gov.au
For those of you who would like to know more about the controversies associate with Lyme disease - my book is available on  the  Amazon KDP programme 

DOWNLOAD IT NOW 






Wednesday, 6 January 2016

My Brother-In-Law Won His Battle With Lyme Disease - You Can Too!

Lyme Disease Case Study - Could this be you?


This is  the story of my brother-in-law John (not his real name) who suffered for so many years with Lyme disease and his amazing recovery once the real cause of his symptoms was discovered and appropriate treatment given. 



John moved to southern Humboldt County in Northern California in 1983. His wife (my sister) and two small children had bought a house on 20 acres that was two miles down a private gravel road. The land is hilly, mostly forested with grassy meadows and brush. They maintained their own power and water systems and use wood for heat. All this requires a lot of hiking around the property to maintain the long pipe from the spring and the gathering of wood for the winter. 

The insect pests around their home are mosquitoes, chiggers and ticks. Deer wander freely on the land. If you have to walk in the grass and bush you may get bitten.

John can’t remember when he first heard about Lyme disease, but it was some years after he had moved there. He learned that a bite from a Lyme infected tick would give you a bull’s-eye rash and mild flue like symptoms. Later the symptoms would develop into swollen and sore joints.

John never experienced these particular symptoms, even though in retrospect, he now suspects he did have Lyme disease as far back as the 1980’s or early 1990’s. Lyme disease is a subtle disease. He says that you can feel fine most of the time and when you don’t, well sometimes you don’t feel your best and that’s life. It happened that Lyme disease had just been discovered in this area about 10 years earlier. Lyme disease is now found in many areas of the US besides its hot spots in the Northeast.

John started having symptoms he could not ignore around 1997, and overall body soreness mainly centered in his upper body. It was painful to take a deep breath and the pain interfered with his sleep and left him with very low energy. The answer to the pain was Aleve (noproxen sodium) one tablet morning and evening. For the low energy he started taking Ritalin, a mild time release amphetamine, 10 mg morning and midday. The Aleve and Ritalin treated the painful symptoms and allowed him to perform in a high stress job.

Around 2004 his mind seemed clouded, he had trouble controlling his emotions and was quick to anger. When he explained this to his doctor, he was prescribed Wellbutrin and that controlled those symptoms.

His years of treating the symptoms and not the disease came to an abrupt end in 2009 when he was hospitalized for bleeding ulcers, the result of taking Aleve for all that time. Now that he was allergic to the most effective pain reliever he became desperate to discover the reason for his symptoms and the permanent cure for his sore body.

A neighbor suggested he see a new doctor at the local clinic. After many negative test results for a variety of other diseases, the doctor asked if he had ever been tested for Lyme disease. He had not because he did not have the classic symptoms of joint swelling and joint pain.

The doctor took a sample of blood and sent it to the laboratory to be tested for Lyme disease.  It was POSITIVE in the screen test and confirmed by the more specific Western Blot method. John had late stage Lyme disease which was diagnosed with a simple blood test and after all these years of suffering, proper treatment could be started to treat the cause of his symptoms.

Testing was also done to see if he had two of the common co-infections associated with Lyme disease: - Babesia, which was positive; and Ehrlichia which was negative.

His general blood count and the test CD-57+ to check his immune status were all normal.

John went on a two month regime of doxycycline antibiotics. Though taking antibiotics for that long was tough he was happy to finally find and treat his disease. Within a couple of months he started feeling less pain and went from taking twelve Tylenol a day to just two at night. His mind also became clearer; he was better able to focus, was less anxious and had better control of his temper.

He feels that the multi-year onset of the symptoms of Lyme disease were subtle. As he aged he was less able to cope with them. The recuperation was long as well. In the five years since the end of his treatment he still feels like his health both physical and mental is improving.

He has since discovered many people of his area were also treated for Lyme disease. He asks newcomers now if they have been tested for Lyme disease. He wishes someone had mentioned it to him years ago. Find out more about Lyme disease and the controversies surrounding it by clicking here.




Thursday, 3 December 2015

Four Factors Required To Prevent Lyme Disease


Prevention of Lyme disease depends on 4 factors:  preventing tick bites, removing the ticks and prophylactic treatment with antibiotics if you have been bitten by a tick and finally it is important to maintain a healthy immune system.




 Wear Protective Clothing

Prevention of Lyme disease involves efforts to prevent tick bites. If walking or tramping in endemic areas, it is important to wear protective clothing such as long-sleeved shirts, hats, and long pants tucked into long socks and/or tramping boots. Check carefully for ticks not only when you get home but frequently while still outside.

Have a Shower and Change Clothes

My sister and brother-in-law, who live in a high-risk Lyme-bearing tick area in California, advise their visitors to have a shower and wash their hair ASAP after a walk or hike or other activities on their land or in their area. They live on a rural block in Salmon Creek where deer roam widely.

They also advise that you check for ticks regularly and to have someone check your back for ticks.  Don't put same clothing on after shower because ticks can hide in the fabric.  They recommend washing your clothes worn on the hike including underwear because ticks can hide in the clothing and bite later.

Either wash clothes or at least put them through a drier because ticks are intolerant to being dried out.

Insecticides

Also, apply insecticides on the skin and/or on the outside of clothing to prevent ticks attaching. For example permethrin or DEET, a slightly yellow oil intended to be applied to the skin or clothing, provides protection against all sorts of biting insects including ticks. For a more natural insecticide use oil of lemon eucalyptus which also repel ticks

Pesticides

Pesticides can also be used to reduce tick numbers in scrub in endemic areas. Products meant for widespread application such as permethrin and its derivatives are preferred. They are available as a liquid concentrate and as granules. If liquid insecticides are used, application should be by fogging, not by coarse sprays. Apply these products in a strip a few feet wide at the perimeter of the lawn at any areas adjacent to woods and underbrush. Also treat any ornamental shrubs near the house that may serve as a habitat for small animals. The best time to apply these products is in late spring and early fall. In every case, professional application is recommended.

Keep the area around your home clear of rubbish

At home remove wood piles, rock walls, and bird feeders as these attract tick-carrying small animals and can increase the risk of acquiring Lyme
Ensure live-stock and pets are treated for ticks as well. Check that pets don’t bring ticks into the house by examining them for ticks if they have been to an endemic area. If you live in the bush, fence off an area around your home so that deer etc. cannot roam too close and ensure you have a suitable rodent eradication program.

Reduce the Natural Reservoir

A community can reduce the incidence of endemic Lyme disease by reducing the numbers of the animals which act as a natural reservoir on which the ticks depend, such as rodents, other small mammals, and deer. Even though deer ticks acquire Lyme disease pathogens from rodents rather than from the deer themselves, Lyme and all other deer tick-borne diseases can be prevented on a regional level by reducing the deer population on which the ticks depend on for their reproductive life cycle.



Ticks must be removed as soon as you notice a bite because the risk of   transmission of Lyme disease increases with the duration of tick attachment. Remember, the sooner the tick is removed, the less likely it is that you will develop and infection.

Most publications suggest that for Lyme disease to be transmitted the tick needs to be attached for 36 to 48 so that the infectious agent has time to travel from within the tick into its salivary glands. Ticks that have been attached that long will be engorged and full of blood. Some say that if a tick is attached for less than 24 hours, infection is unlikely.

However ILADS suggests that transmission may take place in as little as 4 hours of attachment.

The problem is that many people do not realise they have been bitten due to the small size of the nymphs and the analgesic effect of the bite itself, so removal is not an option. The tick eventually drops off after feeding is completed.

Ticks can be removed with tweezers. The best method is to pull the tick out with tweezers as close to the skin as possible. DO NOT twist, crush or squeeze the body of the tick as this may cause the tick to inject more bacteria into the wound. Also be careful not to accidently remove the body leaving the head still attached. It is a good idea to apply a local antiseptic to the area once the tick is removed.

Tape the tick to a card and record the date and location of the bite so it can be used later in diagnoses.

Warning: The Australian Society of Clinical Immunology warns of the dangers of using tweezers especially in people who are allergic to tick bites because you may cause the allergen containing and/or pathogen containing saliva to be injected into the bite. They say the tick should be killed and removed by a medical professional.


There is controversy about prophylactic treatment with antibiotics. Some schools say that if you have removed a blood filled tick then a single dose of doxycycline administered within the 72 hours after removal may reduce the risk of Lyme disease. It is not generally recommended by this school, however, as development of infection is rare. They say that about 50 people would have to be treated this way to prevent one case of infection. Others have a more rigid approach.

IDSA Recommendations


Although routine preventive antibiotic administration is not recommended for individuals with tick bites and no symptoms of disease, the IDSA’s preventative treatment recommendation is that some selected, high-risk tick bites may be treated with a single dose of the antibiotic doxycycline for people who are eligible for the drug. Eligibility criteria for preventive Lyme disease treatment with doxycycline include:

  • The attached tick can be reliably identified as an Ixodes scapularis tick that is estimated to have been attached for 36 hours or longer
  • Preventive treatment can be started within 72 hours of the time the tick was removed
  • Ecologic information indicates that the local rate of infection of these ticks with Borrelia burgdorferi bacteria is 20 percent or greater

ILADS Recommendations


ILADS advises that prophylactic antibiotic treatment (full dose) upon a known tick bite is recommended for those people who fit the following categories:

  • People at higher health risk bitten by an unknown type of tick or tick capable of transmitting Borrelia burgdorferi, e.g., pregnant women, babies and young children, people with serious health problems, and those who are immune-deficient.
  • Persons bitten in an area highly endemic for Lyme Borreliosis by an unidentified tick or tick capable of transmitting B. burgdorferi.
  • Persons bitten by a tick capable of transmitting B. burgdorferi, where the tick is engorged, or the attachment duration of the tick is greater than four hours, and/or the tick was improperly removed. This means when the body of the tick is squeezed upon removal, irritated with toxic chemicals in an effort to get it to back out, or disrupted in such a way that its contents were allowed to contact the bite wound. Such practices increase the risk of disease transmission.
  • A patient, when bitten by a known tick, clearly requests oral prophylaxis and understands the risks. This is a case-by-case decision.

Note: The physician cannot rely on a laboratory test or clinical finding at the time of the bite to definitely rule in or rule out Lyme disease infection, so must use clinical judgment as to whether to use antibiotic prophylaxis. Testing
the tick itself for the presence of the spirochete, even with PCR technology, is helpful but not 100% reliable.

ILADS believe that an established infection by B. burgdorferi can have serious, long-standing or permanent, and painful medical consequences, and be expensive to treat. Since the likelihood of harm arising from prophylactically administered anti-spirochete antibiotics is low, and since treatment is inexpensive and painless, it follows that the risk benefit ratio favors tick bite prophylaxis.


The key to preventing Lyme disease from becoming chronic is having a strong immune system. People with a healthy immune system generally have minimal symptoms at initial infection and never develop chronic disease. Have a good diet, plenty of sleep and exercise.

Find out more about "What Is Lyme Disease" 






Saturday, 7 November 2015

Is Lyme Disease Present in Beautiful New Zealand (NZ)?

I recently returned home to NZ the land of my birth and the country where I studied and practised most of my Microbiology. As I wondered through the beautiful bushland, farmlands, forests and country side I thought I had better update my knowledge about Lyme disease in NZ. In my days working in medical labs in NZ we certainly did not test for it and it was not recognised as a cause of concern. But has the situation changed?



Apparently not, because the Ministry of Health in NZ is not aware of any cases of people catching a disease from a tick bite in New Zealand. They state that the main diseases of concern in some other countries are not currently present in New Zealand. In some countries ticks have transmitted diseases such as: Theileriosis, caused by a protozoan pathogen (Theileria sp.); Lyme disease, caused by Borrelia bacteria, and Spotted fever, caused by Ricketsia bacteria.

The Ministry of health in NZ reiterates that these diseases are NOT actually present in NZ at the current time. So the risk of getting a disease from a tick bite in New Zealand is therefore very low, but there is the potential for this to change – for example, if disease carrying ticks arrive on travellers to New Zealand who have been in countries where they are present.

In NZ, the only cases of Lyme disease have been reported in people that have recently travelled from an endemic area.


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Ticks in NZ


New Zealand has endemic ticks which are native to NZ. They are found in NZ and nowhere else in the world. These species are host-specific and infest mainly birds. Endemic NZ ticks generally do not transmit diseases to humans. Ticks native to NZ are not thought to carry the Borrelia spp bacteria that causes Lyme disease.

However there are also introduced species of tick in NZ – the brown cattle tick (Haemaphysalis longicornis), which can infest warm-blooded mammals (such as cattle or humans). In some parts of the world the cattle tick is known as vector of animal and human diseases, such as tick borne fever, Japanese (Oriental) spotted fever, Russian spring-summer encephalitis. However, these diseases are not present in NZ.

The ticks found in NZ definitely have the ability to transmit pathogens, such as bacteria, protozoa and viruses. Fortunately, these tick borne pathogens are rare in NZ. However, since travellers could introduce tick borne diseases to NZ, there is a small risk that the ticks currently present in NZ could spread introduced diseases.

To date there is no evidence of Lyme disease borne endemically NZ. This land of All Blacks, sheep and hobbits is not yet the home of Lyme disease. But like everything else bad in this tiny land of glory (rats, possum, plant diseases) it could be introduced and medics need to be on the alert for emerging diseases.


Monday, 2 November 2015

Can Chronic Lyme disease or MSIDS be Cured with a 16 Point Plan?


Dr Horowitz who has treated thousands of patients for chronic Lyme disease has come up with a  16 point map for diagnosing and treating people with chronic Lyme disease, which he refers to as  MSIDS (refer to my previous post on this). MSIDS is a term which is not yet accepted by mainstream medical practitioners.

According to Dr Horowitz, MSIDS stands for Multiple Systemic Infectious Diseases Syndrome. He believes that chronically ill, complex patients, no matter which diagnosis they have, often have simultaneous multiple bacterial, parasitic, viral, and fungal infections which complicate their illnesses and the diagnosis of that illness.



He also believes that these people have associated immune dysfunction, large environmental toxin loads, hormonal disorders, mitochondrial dysfunction, allergies, functional metabolic abnormalities, sleep problems, and underlying psychological disorders. All these conditions need to be assessed and treated in order to get a full recovery.

In order to cure these complex cases Dr Horowitz has devised a 16 point MSIDS map model which systematically identifies and treats all the related conditions associated with the chronic infection. The MSIDS map looks at and treats the 16 simultaneous reasons why these patients are suffering and not getting better with traditional treatment. Many patients suffer from many overlapping factors identified in the map and this of course complicates the clinical symptoms and diagnosis of the illness.

He has used his model to successfully cure people suffering from chronic illnesses which to date have been diagnosed as some sort of non-specific condition such as CFS Chronic Fatigue Syndrome. He reports he has already had huge success treating patients with these conditions.

His 16 point differential diagnostic map and treatment plan goes into more detail in his book: "Why Can't I Get Better". He advocates that each point in his plan is investigated step by step. If the patient is suffering from symptoms related to the step, then treat the underlying cause and then move to the next step. The 16 steps he discusses in his book are:

1.    Lyme and co-infections
2.    Immunity
3.    Inflammation
4.    Environmental toxins
5.    Nutrition
6.    Mitochondria
7.    Endocrine system
8.    Neuro-generative disorders
9.    Mental state
10.  Sleep
11.  Autonomic nervous system and POTS
12.  Allergies
13.  Stomach issues
14.  Liver
15.  Pain
16.  Exercise

He has proven that his model can be applied to individuals with complex chronic medical disorders, to help solve the mystery of their illness, as well as providing treatment options that have not been available before. His goal in presenting the MSIDS map is to offer sufferers a broad based solution for Lyme disease and the related co-infections that provides a bridge for the two opposing medical groups (IDSA and ILADS) so that they can join together and help all of these patients.



Dr Horowitz believes that people with chronic conditions such as Lyme disease, CFS, fibromyalgia, multiple sclerosis, rheumatoid arthritis, and Lupus etc would all benefit from a treatment plan using his 16 point map model. All these patients have similar symptoms such as have fatigue, trouble sleeping, neurological systems, poor memory, joint and muscle pain, environmental toxins, food sensitivities and allergies, hormonal imbalances and so on. These diseases all mimic each other. It is just that the root cause for each disease has not yet been identified.

He states that the one common denominator for chronic Lyme disease, chronic fatigue, fibromyalgia and other related conditions is inflammation. The MSIDS model is still applicable if you do not have Lyme because it is still the same inflammatory problem at the core. These patients may have the same symptoms whether they have Borrelia or not. If they have not got Borrelia then they have non-Lyme MSIDS. Dr Horowitz has found that the most common infections which cause patients to remain chronically ill are Lyme disease, Babesia, Bartonella and mycoplasma. These can persist despite seemingly adequate therapy.

Dr Horowitz says that if we look at all the medical causes for chronic illness on the MSIDS map, we see that it can be bacterial infections, viral infections, parasitic infections, or a candida/fungal infection, but since Chronic Fatigue Syndrome and Fibromyalgia are heterogeneous states, you may find each person has a different combination of infections, different viruses, different toxins, different hormone imbalances and so on, even though you are labelling it as Lyme disease, MSIDS, non-Lyme MSIDS, CFS fibromyalgia or whatever else it still results in the same or similar symptoms with the same inflammatory pathway causing the symptoms.

Once the infection is treated properly, food sensitivities and allergies removed, mineral deficiencies replaced, hormones rebalanced, inflammation and cytokines decreased, and   patients detoxed using glutathione, they are going to feel a lot better. The key is always going back to the MSIDS map and determining how many overlapping factors may be causing the clinical symptoms of the illness.

Dr Horowitz believes that if we were to apply the 16 point MSIDS map to these chronic patients who do not respond to usual treatment, and see how many abnormalities they have, we might find that each one is different, but if we get them to sleep, take away their food sensitivities, pull out the heavy metals, replace any mineral deficiencies (like zinc), balance their hormones, and adequately treat all the infections which drive inflammation, they will probably feel a whole lot better.

Dr Horowitz plan uses combinations of antibiotics to reduce bacterial load and target all the different forms of the Borrelia infection (cell wall, intracellular, cystic forms, also targeting biofilms). Anti- parasite and anti-viral drugs also need to be given when appropriate. The key is to rotate treatment protocols and use the 16 point plan to reduce inflammation so that antibiotics can be given for a lesser time. Most patients with a history of persistent Lyme symptoms then need to stay on an effective herbal protocol for months to years after traditional treatment protocols or they will relapse.

The MSIDS model ensures that all sources of inflammation are being addressed. Whilst infections clearly play one of the largest roles in keeping people sick, the "sickness syndrome" of fatigue, joint pain, muscle pain, brain fog and mood disorder is primarily due to inflammatory cytokines, and can be caused by multiple overlapping factors on the MSIDS model. 

A patient will not get better unless you can get patients to sleep, clear up the nutritional deficiencies, remove their sensitive/allergic foods, balance their hormones, address their dysautonomia and mitochondrial dysfunction, detoxify them from neurotoxins as well as environmental toxins, and decrease their associated inflammation. All of these are part of the    16 point MSIDS model, which is highly recommend it to any patient with chronic persistent symptoms who has failed traditional therapies.
.

.Addressing all 16 points on the map will reduce the symptoms and send the Lyme disease into remission. It is possible to cure early Lyme disease so it is critical seek treatment ASAP if you think you may have it. But chronic Lyme disease is more difficult to cure. However, we live with viruses and bacteria in our bodies all the time and our immune system keeps them in check. It is a matter of finding balance, and getting the infectious load down to a point where your immune system takes over, and keeps these symptoms at bay.